Individual genetic and genomic research results and the tradition of informed consent: exploring US review board guidance (Q35629414)

9 August 2017

title

Individual genetic and genomic research results and the tradition of informed consent: exploring US review board guidance (English)

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9 August 2017

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Janet K Williams

4

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author name string

Christian Simon

series ordinal

1

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9 August 2017

Laura A Shinkunas

series ordinal

2

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9 August 2017

Debra Brandt

series ordinal

3

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9 August 2017

publication date

5 March 2012

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Journal of Medical Ethics

9 August 2017

published in

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9 August 2017

volume

38

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9 August 2017

issue

7

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9 August 2017

page(s)

417-422

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Informed consent and genomic incidental findings: IRB chair perspectives

9 August 2017

cites work

1 reference

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Is informed consent broken?

12 July 2018

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Length and complexity of US and international HIV consent forms from federal HIV network trials

12 July 2018

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Disclosing individual CDKN2A research results to melanoma survivors: interest, impact, and demands on researchers

12 July 2018

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Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

12 July 2018

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Returning individual research results: development of a cancer genetics education and risk communication protocol

12 July 2018

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Offering individual genetic research results: context matters

12 July 2018

1 reference

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CLIA-tested genetic variants on commercial SNP arrays: potential for incidental findings in genome-wide association studies

12 July 2018

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Disclosure of research results from cancer genomic studies: state of the science

12 July 2018

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The law of incidental findings in human subjects research: establishing researchers' duties

12 July 2018

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Incidental findings in genetics research using archived DNA

12 July 2018

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Introduction: the challenge of incidental findings

12 July 2018

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Duty to disclose what? Querying the putative obligation to return research results to participants

12 July 2018

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Ethics. Incidental findings in brain imaging research

12 July 2018

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Three approaches to qualitative content analysis

12 July 2018

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Disclosing individual results of clinical research: implications of respect for participants

12 July 2018

1 reference

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Readability standards for informed-consent forms as compared with actual readability

12 July 2018

1 reference

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Return of results: towards a lexicon?

12 July 2018

1 reference

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Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.

25 September 2018

1 reference

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10.1136/MEDETHICS-2011-100273

25 September 2018

Identifiers

DOI

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9 August 2017

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9 August 2017

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