'Information is information': a public perspective on incidental findings in clinical and research genome-based testing (Q35101415)

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23590238%20AND%20SRC:MED&resulttype=core&format=json

28 February 2020

title

'Information is information': a public perspective on incidental findings in clinical and research genome-based testing (English)

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23590238%20AND%20SRC:MED&resulttype=core&format=json

28 February 2020

0 references

1

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23590238%20AND%20SRC:MED&resulttype=core&format=json

28 February 2020

Lisa L. Shah

5

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23590238%20AND%20SRC:MED&resulttype=core&format=json

28 February 2020

author name string

M Driessnack

2

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23590238%20AND%20SRC:MED&resulttype=core&format=json

28 February 2020

A Hanish

3

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23590238%20AND%20SRC:MED&resulttype=core&format=json

28 February 2020

V A Johnson

4

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23590238%20AND%20SRC:MED&resulttype=core&format=json

28 February 2020

C M Simon

6

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23590238%20AND%20SRC:MED&resulttype=core&format=json

28 February 2020

J K Williams

7

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23590238%20AND%20SRC:MED&resulttype=core&format=json

28 February 2020

language of work or name

English

0 references

publication date

3 May 2013

1 reference

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28 February 2020

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23590238%20AND%20SRC:MED&resulttype=core&format=json

28 February 2020

volume

84

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23590238%20AND%20SRC:MED&resulttype=core&format=json

28 February 2020

issue

1

1 reference

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28 February 2020

page(s)

11-18

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23590238%20AND%20SRC:MED&resulttype=core&format=json

The disclosure of incidental genomic findings: an "ethically important moment" in pediatric research and practice

28 February 2020

cites work

1 reference

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A closer look at the recommended criteria for disclosing genetic results: perspectives of medical genetic specialists, genomic researchers, and institutional review board chairs

9 July 2018

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Perspectives of clinical genetics professionals toward genome sequencing and incidental findings: a survey study

9 July 2018

1 reference

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Genetics specialists' perspectives on disclosure of genomic incidental findings in the clinical setting

9 July 2018

1 reference

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Shared decision making: a model for clinical practice

9 July 2018

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Managing incidental findings and research results in genomic research involving biobanks and archived data sets

9 July 2018

1 reference

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Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study

9 July 2018

1 reference

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Researcher and institutional review board chair perspectives on incidental findings in genomic research

9 July 2018

1 reference

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Informed consent and genomic incidental findings: IRB chair perspectives

9 July 2018

1 reference

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The meaning of genetic research results: reflections from individuals with and without a known genetic disorder

9 July 2018

1 reference

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Epilepsy patient-participants and genetic research results as "answers".

9 July 2018

1 reference

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Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility

9 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4334458

What research participants want to know about genetic research results: the impact of "genetic exceptionalism".

9 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4334458

Public perspectives on returning genetics and genomics research results

9 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4334458

Charting a course for genomic medicine from base pairs to bedside

9 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4334458

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

9 July 2018

1 reference

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Genomic medicine--an updated primer

9 July 2018

1 reference

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Interventions for improving the adoption of shared decision making by healthcare professionals

9 July 2018

1 reference

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Whole genome scanning: resolving clinical diagnosis and management amidst complex data

9 July 2018

1 reference

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Understanding incidental findings in the context of genetics and genomics

9 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4334458

Managing incidental findings in human subjects research: analysis and recommendations

9 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4334458

Research ethics recommendations for whole-genome research: consensus statement

9 July 2018

1 reference

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Assessing hypothetical scenario methodology in genetic susceptibility testing analog studies: a quantitative review

9 July 2018

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Advocacy groups as research organizations: the PXE International example

9 July 2018

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4334458

The incidentalome: a threat to genomic medicine

9 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4334458

Three approaches to qualitative content analysis

9 July 2018

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When "minimal risk" research yields clinically-significant data, maybe the risks aren't so minimal

9 July 2018

1 reference

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Disclosure of individual research results in clinico-genomic trials: challenges, classification and criteria for decision-making

9 July 2018

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Filipino explanatory models of cleft lip with or without cleft palate

27 September 2018

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Evaluating the utility of personal genomic information

27 September 2018

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The incidental discovery of nonpaternity through genetic carrier screening: an exploration of lay attitudes.

27 September 2018

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“I want to know what's in Pandora's box”: Comparing stakeholder perspectives on incidental findings in clinical whole genomic sequencing

27 September 2018

2 references

Crossref

https://api.crossref.org/works/10.1111%2FCGE.12167

21 January 2018

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4334458

Public Expectations for Return of Results—Time to Stop Being Paternalistic?

16 November 2018

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https://api.crossref.org/works/10.1111%2FCGE.12167

Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time

21 January 2018

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Communication of biobanks' research results: what do (potential) participants want?

16 November 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/23590238

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Influence in science dialogue: Individual attitude changes as a result of dialogue between laypersons and scientists

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/23590238

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Empowering the public to be informed consumers of genetic technologies and services

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/23590238

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1111/CGE.12167

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23590238%20AND%20SRC:MED&resulttype=core&format=json

28 February 2020

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:23590238%20AND%20SRC:MED&resulttype=core&format=json

28 February 2020

PubMed publication ID

23590238

1 reference