Research ethics. Research practice and participant preferences: the growing gulf. (Q34603471)

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20 January 2020

title

Research ethics. Research practice and participant preferences: the growing gulf (English)

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20 January 2020

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author

Susan B. Trinidad

1

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20 January 2020

author name string

S M Fullerton

2

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:21252333%20AND%20SRC:MED&resulttype=core&format=json

20 January 2020

E J Ludman

3

1 reference

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20 January 2020

G P Jarvik

4

1 reference

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20 January 2020

E B Larson

5

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20 January 2020

W Burke

6

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20 January 2020

language of work or name

English

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publication date

1 January 2011

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20 January 2020

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20 January 2020

volume

331

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20 January 2020

page(s)

287-288

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20 January 2020

issue

6015

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Glad you asked: participants' opinions of re-consent for dbGap data submission

20 January 2020

cites work

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3044500

Is deidentification sufficient to protect health privacy in research?

7 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3044500

Public and biobank participant attitudes toward genetic research participation and data sharing

7 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3044500

Hypothetical and factual willingness to participate in biobank research

7 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3044500

Genomic research and wide data sharing: views of prospective participants

7 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3044500

Meeting the governance challenges of next-generation biorepository research

7 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3044500

Transforming the culture of biomedical research from compliance to trustworthiness: insights from nonmedical sectors

7 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3044500

Informed consent in biobank research: a deliberative approach to the debate

7 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3044500

Community consultation and communication for a population-based DNA biobank: the Marshfield clinic personalized medicine research project

7 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3044500

Ethics. Researchers to return blood samples to the Yanomamö.

7 July 2018

1 reference

https://api.crossref.org/works/10.1126%2FSCIENCE.1199000

The Havasupai Indian tribe case--lessons for research involving stored biologic samples.

21 January 2018

1 reference

https://api.crossref.org/works/10.1126%2FSCIENCE.1199000

Research on stored biological samples: views of African American and White American cancer patients.

21 January 2018

1 reference

https://api.crossref.org/works/10.1126%2FSCIENCE.1199000

Attitudes and perceptions of patients towards methods of establishing a DNA biobank.

21 January 2018

1 reference

https://api.crossref.org/works/10.1126%2FSCIENCE.1199000

Subjects matter: a survey of public opinions about a large genetic cohort study.

21 January 2018

1 reference

https://api.crossref.org/works/10.1126%2FSCIENCE.1199000

Transplant tourism in China: a tale of two transplants

21 January 2018

1 reference

https://api.crossref.org/works/10.1126%2FSCIENCE.1199000

The devil in the detail(ing).

21 January 2018

1 reference

https://api.crossref.org/works/10.1126%2FSCIENCE.1199000

Dementia and Alzheimer disease incidence: a prospective cohort study.

21 January 2018

1 reference

https://api.crossref.org/works/10.1126%2FSCIENCE.1199000

Medicine. Reestablishing the researcher-patient compact.

21 January 2018

1 reference

https://api.crossref.org/works/10.1126%2FSCIENCE.1199000

Building a community-based participatory research center to investigate obesity and diabetes in Alaska Natives.

21 January 2018

1 reference

https://api.crossref.org/works/10.1126%2FSCIENCE.1199000

Medical tourism and bariatric surgery: more moral challenges.

21 January 2018

1 reference

https://api.crossref.org/works/10.1126%2FSCIENCE.1199000

Ethics. DNA returned to tribe, raising questions about consent

21 January 2018

1 reference

https://api.crossref.org/works/10.1126%2FSCIENCE.1199000

Why Deidentification Fails Research Subjects and Researchers

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3044500

“Human Non-Subjects Research”: Privacy and Compliance

9 December 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3044500

9 December 2018

Identifiers

DOI

10.1126/SCIENCE.1199000

1 reference

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20 January 2020

1 reference

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20 January 2020

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