Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents (Q34483451)

2 August 2017

1 reference

title

Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents. (English)

1 reference

2 August 2017

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1 reference

Jonathan S Berg

3

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Ingrid A Holm

object named as

Ingrid A Holm

6

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Benjamin S Wilfond

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object named as

Benjamin S Wilfond

1 reference

2 August 2017

1

Jeffrey R Botkin

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2 August 2017

John W Belmont

2

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2 August 2017

Benjamin E Berkman

4

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2 August 2017

Yvonne Bombard

5

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2 August 2017

Howard P Levy

7

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2 August 2017

Kelly E Ormond

8

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2 August 2017

Howard M Saal

9

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2 August 2017

Nancy B Spinner

10

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2 August 2017

Joseph D McInerney

12

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2 August 2017

language of work or name

English

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publication date

1 July 2015

1 reference

American Journal of Human Genetics

2 August 2017

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2 August 2017

97

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2 August 2017

1

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2 August 2017

6-21

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The unintended implications of blurring the line between research and clinical care in a genomic age.

2 August 2017

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Gatekeepers or intermediaries? The role of clinicians in commercial genomic testing

6 July 2018

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Anticipate and communicate: Ethical management of incidental and secondary findings in the clinical, research, and direct-to-consumer contexts (December 2013 report of the Presidential Commission for the Study of Bioethical Issues).

6 July 2018

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Ashkenazi Jewish population screening for Tay-Sachs disease: the international and Australian experience

6 July 2018

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Return of genomic results to research participants: the floor, the ceiling, and the choices in between

6 July 2018

1 reference

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Risk assessment, genetic counseling, and genetic testing for BRCA-related cancer in women: a systematic review to update the U.S. Preventive Services Task Force recommendation

6 July 2018

1 reference

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Direct-to-Consumer Genetic Testing and Personal Genomics Services: A Review of Recent Empirical Studies

6 July 2018

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Revealing the incidentalome when targeting the tumor genome

6 July 2018

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Primary care patients' views and decisions about, experience of and reactions to direct-to-consumer genetic testing: a longitudinal study

6 July 2018

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ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

6 July 2018

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Dealing with the unexpected: consumer responses to direct-access BRCA mutation testing

6 July 2018

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Impact of direct-to-consumer genomic testing at long term follow-up

6 July 2018

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6 July 2018

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Pedigree and genotyping quality analyses of over 10,000 DNA samples from the Generation Scotland: Scottish Family Health Study

6 July 2018

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A health-care system perspective on implementing genomic medicine: pediatric acute lymphoblastic leukemia as a paradigm

6 July 2018

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Ethical and policy issues in genetic testing and screening of children

6 July 2018

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Do researchers have an obligation to actively look for genetic incidental findings?

6 July 2018

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American College of Medical Genetics and Genomics: standards and guidelines for documenting suspected consanguinity as an incidental finding of genomic testing

6 July 2018

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Primary-care physicians' access to genetic specialists: an impediment to the routine use of genomic medicine?

6 July 2018

1 reference

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Currents in contemporary bioethics. Identifying consanguinity through routine genomic analysis: reporting requirements

6 July 2018

1 reference

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Paediatric pharmacogenomics: an overview

6 July 2018

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Psychiatric pharmacogenomics in pediatric psychopharmacology

6 July 2018

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New ways to detect adverse drug reactions in pediatrics

6 July 2018

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Interpreting pharmacogenetic data in the developing neonate: the challenge of hitting a moving target

6 July 2018

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Personalized medicine in pediatric cardiology: do little changes make a big difference?

6 July 2018

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Genomic patterns of homozygosity in worldwide human populations

6 July 2018

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Direct to consumer genetic testing: a systematic review of position statements, policies and recommendations.

6 July 2018

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Direct-to-consumer genomic testing: systematic review of the literature on user perspectives.

6 July 2018

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Risky business: risk perception and the use of medical services among customers of DTC personal genetic testing

6 July 2018

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Legislation on direct-to-consumer genetic testing in seven European countries

6 July 2018

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Citizens' values regarding research with stored samples from newborn screening in Canada

6 July 2018

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Public attitudes regarding the use of residual newborn screening specimens for research

6 July 2018

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Health-care providers' views on pursuing reproductive benefit through newborn screening: the case of sickle cell disorders.

6 July 2018

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Genomics really gets personal: how exome and whole genome sequencing challenge the ethical framework of human genetics research

6 July 2018

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Influence of genetic risk information on parental role identity in adolescent girls and young women from families with fragile X syndrome

6 July 2018

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Motivations and perceptions of early adopters of personalized genomics: perspectives from research participants

6 July 2018

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Are the kids really all right? Direct-to-consumer genetic testing in children: are company policies clashing with professional norms?

6 July 2018

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Where are you going, where have you been: a recent history of the direct-to-consumer genetic testing market

6 July 2018

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6 July 2018

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6 July 2018

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Statement of the ESHG on direct-to-consumer genetic testing for health-related purposes

6 July 2018

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Consensus statement: chromosomal microarray is a first-tier clinical diagnostic test for individuals with developmental disabilities or congenital anomalies

6 July 2018

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Effects of genetic risk information on children's psychosocial wellbeing: a systematic review of the literature

6 July 2018

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Reconsidering reproductive benefit through newborn screening: a systematic review of guidelines on preconception, prenatal and newborn screening

6 July 2018

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6 July 2018

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Consent for newborn screening: the attitudes of health care providers.

6 July 2018

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6 July 2018

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6 July 2018

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6 July 2018

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6 July 2018

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6 July 2018

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6 July 2018

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6 July 2018

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6 July 2018

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6 July 2018

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27 October 2018

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27 October 2018

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27 October 2018

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27 October 2018

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27 October 2018

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27 October 2018

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27 October 2018

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27 October 2018

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27 October 2018

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27 October 2018

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Identifiers

DOI

1 reference

2 August 2017

1 reference

2 August 2017

1 reference