Biobank participants' preferences for disclosure of genetic research results: perspectives from the OurGenes, OurHealth, OurCommunity project (Q34106590)

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English	Biobank participants' preferences for disclosure of genetic research results: perspectives from the OurGenes, OurHealth, OurCommunity project	scientific article

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scholarly article

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Europe PubMed Central

PubMed publication ID

31 July 2017

Biobank participants' preferences for disclosure of genetic research results: perspectives from the OurGenes, OurHealth, OurCommunity project (English)

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Europe PubMed Central

PubMed publication ID

31 July 2017

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Elizabeth W Karlson

2

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Elizabeth W Karlson

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Europe PubMed Central

PubMed publication ID

31 July 2017

Christine E. Seidman

5

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Christine E Seidman

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Europe PubMed Central

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31 July 2017

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Nicole L Allen

1

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Europe PubMed Central

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31 July 2017

Susan Malspeis

3

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Europe PubMed Central

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31 July 2017

Bing Lu

4

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Europe PubMed Central

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31 July 2017

Lisa Soleymani Lehmann

6

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Europe PubMed Central

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31 July 2017

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publication date

1 June 2014

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Europe PubMed Central

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31 July 2017

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Europe PubMed Central

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31 July 2017

89

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Europe PubMed Central

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31 July 2017

6

1 reference

Europe PubMed Central

PubMed publication ID

31 July 2017

738-746

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Europe PubMed Central

PubMed publication ID

31 July 2017

Researchers' views on return of incidental genomic research results: qualitative and quantitative findings

1 reference

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Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants' relatives

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Challenges in creating an opt-in biobank with a registrar-based consent process and a commercial EHR.

1 reference

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Managing incidental findings and research results in genomic research involving biobanks and archived data sets

1 reference

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5 July 2018

Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study

1 reference

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Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network

1 reference

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Practical implementation issues and challenges for biobanks in the return of individual research results

1 reference

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IRB perspectives on the return of individual results from genomic research

1 reference

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Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility

1 reference

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Motivators for participation in a whole-genome sequencing study: implications for translational genomics research

1 reference

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Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

1 reference

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Personal genomics and individual identities: motivations and moral imperatives of early users

1 reference

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The return of individual research findings in paediatric genetic research

1 reference

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5 July 2018

Researcher practices on returning genetic research results

1 reference

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5 July 2018

Researcher perspectives on disclosure of incidental findings in genetic research

1 reference

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5 July 2018

Returning individual research results: development of a cancer genetics education and risk communication protocol

1 reference

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5 July 2018

Preferences regarding genetic research results: comparing veterans and nonveterans responses

1 reference

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Prospective biorepository participants' perspectives on access to research results

1 reference

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Disclosure of research results from cancer genomic studies: state of the science

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Public expectations for return of results from large-cohort genetic research

1 reference

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Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support

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Managing incidental findings in human subjects research: analysis and recommendations

1 reference

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Communicating the results of clinical research to participants: attitudes, practices, and future directions

1 reference

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5 July 2018

Ethical, legal, and social implications of biobanks for genetics research

1 reference

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5 July 2018

Research ethics and the challenge of whole-genome sequencing

1 reference

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5 July 2018

Disclosing individual genetic results to research participants

1 reference

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An empirical examination of the management of return of individual research results and incidental findings in genomic biobanks

1 reference

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Subjects matter: a survey of public opinions about a large genetic cohort study.

1 reference

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Informing study participants of research results: an ethical imperative.

1 reference

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Risks to Relatives in Genomic Research: A Duty to Warn?

1 reference

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Disclosing Individual Genetic Research Results to Deceased Participants’ Relatives by Means of a Qualified Disclosure Policy

1 reference

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28 October 2018

Identifiers

10.1016/J.MAYOCP.2014.03.015

1 reference

Europe PubMed Central

PubMed publication ID

31 July 2017

PMC publication ID

1 reference

Europe PubMed Central

PubMed publication ID

31 July 2017

PubMed publication ID

1 reference

Europe PubMed Central

PubMed publication ID

31 July 2017

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