Clinical Practice Guidelines for Rare Diseases: The Orphanet Database (Q30490723)

21 August 2017

Clinical Practice Guidelines for Rare Diseases: The Orphanet Database (English)

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21 August 2017

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Sonia Pavan

1

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author name string

Kathrin Rommel

2

1 reference

21 August 2017

María Elena Mateo Marquina

3

1 reference

21 August 2017

Sophie Höhn

4

1 reference

21 August 2017

Valérie Lanneau

5

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21 August 2017

Ana Rath

6

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21 August 2017

language of work or name

English

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publication date

18 January 2017

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21 August 2017

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21 August 2017

12

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21 August 2017

1

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21 August 2017

e0170365

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Creative Commons Attribution 4.0 International

21 August 2017

start time

18 January 2017

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April 2022 Public Data File from Crossref

copyright status

copyrighted

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cites work

Review and evaluation of the methodological quality of the existing guidelines and recommendations for inherited neurometabolic disorders

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5242437

Clinical practice guidelines and consensus statements in oncology--an assessment of their methodological quality.

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5242437

Retrieving clinical evidence: a comparison of PubMed and Google Scholar for quick clinical searches

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5242437

Guidelines for guidelines: are they up to the task? A comparative assessment of clinical practice guideline development handbooks

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5242437

Medical literature searches: a comparison of PubMed and Google Scholar

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5242437

Systematic review of the methodological quality of clinical guideline development for the management of chronic disease in Europe

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5242437

The quality of clinical practice guidelines over the last two decades: a systematic review of guideline appraisal studies

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5242437

AGREE II: advancing guideline development, reporting and evaluation in health care

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5242437

Development of evidence-based clinical practice guidelines (CPGs): comparing approaches.

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5242437

Heterogeneity in cancer guidelines: should we eradicate or tolerate?

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5242437

A systematic review of appraisal tools for clinical practice guidelines: multiple similarities and one common deficit

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5242437

Development and validation of an international appraisal instrument for assessing the quality of clinical practice guidelines: the AGREE project

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5242437

How reference networks develop, implement, and monitor guidelines.

20 June 2018

1 reference

https://api.crossref.org/works/10.1371%2FJOURNAL.PONE.0170365

DYSCERNE: developing clinical management guidelines for selected dysmorphic syndromes.

21 January 2018

1 reference

https://api.crossref.org/works/10.1371%2FJOURNAL.PONE.0170365

The expert patient: towards a novel definition.

21 January 2018

1 reference

https://api.crossref.org/works/10.1371%2FJOURNAL.PONE.0170365

Beyond Horses to Zebras: Sicca Syndrome

21 January 2018

1 reference

https://api.crossref.org/works/10.1371%2FJOURNAL.PONE.0170365

Professional clinical guidelines for rare diseases: methodology

21 January 2018

1 reference

https://api.crossref.org/works/10.1371%2FJOURNAL.PONE.0170365

10.1371/JOURNAL.PONE.0170365

21 January 2018

Identifiers

DOI

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21 August 2017

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21 August 2017

PubMed publication ID

28099516

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