Patient Perspective on Acute Intermittent Porphyria with Frequent Attacks: A Disease with Intermittent and Chronic Manifestations (Q89146001)

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29915990%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

title

Patient Perspective on Acute Intermittent Porphyria with Frequent Attacks: A Disease with Intermittent and Chronic Manifestations (English)

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29915990%20AND%20SRC:MED&resulttype=core&format=json

acute intermittent porphyria

31 March 2020

main subject

1 reference

Amy Simon

1

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29915990%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

Farrah Pompilus

2

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29915990%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

William Querbes

3

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29915990%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

Alex Wei

4

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29915990%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

Sara Strzok

5

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29915990%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

Craig Penz

6

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29915990%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

Desiree Lyon Howe

7

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29915990%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

Jessica R Hungate

8

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29915990%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

Jae B Kim

9

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29915990%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

Sonalee Agarwal

10

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29915990%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

Patrick Marquis

11

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29915990%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

publication date

1 October 2018

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29915990%20AND%20SRC:MED&resulttype=core&format=json

The Patient: Patient-Centered Outcomes Research

31 March 2020

published in

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29915990%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

volume

11

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29915990%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

page(s)

527-537

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29915990%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

issue

5

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29915990%20AND%20SRC:MED&resulttype=core&format=json

Creative Commons Attribution-NonCommercial 4.0 International

31 March 2020

copyright license

start time

19 June 2018

1 reference

April 2022 Public Data File from Crossref

copyright status

copyrighted

0 references

cites work

Qualitative interviews in medical research

1 reference

12 December 2020

Mortality in patients with acute intermittent porphyria requiring hospitalization: a United States case series.

1 reference

12 December 2020

Women's experience of suffering repeated severe attacks of acute intermittent porphyria.

1 reference

12 December 2020

Self-rated psychosocial consequences and quality of life in the acute porphyrias.

1 reference

12 December 2020

Acute intermittent porphyria in women: clinical expression, use and experience of exogenous sex hormones. A population-based study in northern Sweden

1 reference

12 December 2020

Recommendations for the diagnosis and treatment of the acute porphyrias

1 reference

12 December 2020

Anxiety and depression in the acute porphyrias.

1 reference

12 December 2020

Clinical aspects of acute intermittent porphyria in northern Sweden: a population-based study.

1 reference

12 December 2020

Qualitative research and content validity: developing best practices based on science and experience

1 reference

12 December 2020

1 reference

12 December 2020

What about N? A methodological study of sample-size reporting in focus group studies

1 reference

12 December 2020

The porphyrias: advances in diagnosis and treatment

1 reference

12 December 2020

The incidence of inherited porphyrias in Europe

1 reference

12 December 2020

Best practice guidelines on clinical management of acute attacks of porphyria and their complications

1 reference

12 December 2020

Acute porphyrias in the USA: features of 108 subjects from porphyrias consortium

1 reference

12 December 2020

Audit of the Use of Regular Haem Arginate Infusions in Patients with Acute Porphyria to Prevent Recurrent Symptoms.

1 reference

12 December 2020

Anthropometric and Quality-of-Life Parameters in Acute Intermittent Porphyria Patients

1 reference

12 December 2020

An update of clinical management of acute intermittent porphyria

1 reference

12 December 2020

Experiences and concerns of patients with recurrent attacks of acute hepatic porphyria: A qualitative study

1 reference

12 December 2020

How patient participation was used to develop a questionnaire that is fit for purpose for assessing quality of life in severe asthma.

1 reference

12 December 2020

10.1007/S40271-018-0319-3

Identifiers

DOI

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29915990%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29915990%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

1 reference